Annabelle Potts was a girl with the deadly brain cancer known as diffuse intrinsic pontine glioma (DIPG) whose family was victimized by quacks. Unfortunately, that’s not how the media is reporting it. As is frequently the case, Annabelle’s story is being presented as one of triumph, and the quacks who treated her as legitimate experimental therapy.
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Earlier this week, I wrote about the tragic story of Demi Knight, and 11-year-old girl in the UK with medulloblastoma with only a few months to live. I wondered how cancer quack Stanislaw Burzynski could still be taking advantage of such patients in 2018. Here, I note the role of the press.
In the 1970s, young polish expat and cancer researcher Dr. Stanislaw Burzynski thought he had found a cure for many incurable cancers. He dubbed it antineoplastons (ANPs_. Unfortunately, he left the path of science and started treating patients before he had evidence that ANPs work. Four decades later, without ever having published compelling evidence for anticancer efficacy of ANPs, he’s still luring desperate patients to his clinic. Now he’s set to branch out to quack clinics in Mexico. Why can’t the law stop him?
With the rise of quack stem cell clinics, there has been a rise of crowdfunding campaigns to assist patients in paying for expensive stem cell treatments of unproven efficacy. Unfortunately, as a recent study shows, these crowdfunding campaigns nearly always oversell efficacy and ignore potential risks of the treatments, while making powerful emotional appeals.
R.I.P., McKenzie Lowe. Unfortunately, Stanislaw Burzynski was no more able to save you than anyone else, his claims of great success treating pediatric brain tumors notwithstanding: HUDSON — Thirteen-year-old Hudson resident McKenzie Lowe died Friday evening after a 2-year-battle against an aggressive and inoperable brain stem tumor. McKenzie died at 10:27 p.m. in her own […]