Lily Wythe is a teenaged girl with a deadly brainstem cancer whose case has made international news because of her family’s crowdfunding to get her into a clinical trial. Should investigators be allowed to fund trials this way?
GoFundMe is frequently used by patients to pay for quackery. How can its policies be changed to make misuse of the platform more difficult?
A new study by Jeremy Snyder and Tim Caulfield shows how much money is raised by GoFundMe and other crowdfunding sources to support quackery. It’s a lot of money, which is unsurprising to Orac, given that he’s been writing about how crowdfunding is “baked into” the business model of cancer quacks since he discovered Stanislaw Burzynski a decade ago.
With the rise of quack stem cell clinics, there has been a rise of crowdfunding campaigns to assist patients in paying for expensive stem cell treatments of unproven efficacy. Unfortunately, as a recent study shows, these crowdfunding campaigns nearly always oversell efficacy and ignore potential risks of the treatments, while making powerful emotional appeals.
I’ve frequently called “right to try” laws that are popping up in various states like so much kudzu, to the point where 31 states have passed them in a little over two years, an amazing pace, a cruel sham, given how incredibly unlikely they are to help a single patient. Basically, state-level right-to-try laws are […]