Harassment by cranks and antivaxxers is all too often the price of defending science-based medicine. Is it worth it? How can we stop it?
Search: “stanislaw burzynski”
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Lily Wythe is a teenaged girl with a deadly brainstem cancer whose case has made international news because of her family’s crowdfunding to get her into a clinical trial. Should investigators be allowed to fund trials this way?
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GoFundMe is frequently used by patients to pay for quackery. How can its policies be changed to make misuse of the platform more difficult?
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Libella Gene Therapeutics, LLC made the news last week for announcing a “pay-to-play” trial of its telomerase-based anti-aging gene therapy. What was shocking about the announcement was not that it was a “pay-to-play” trial, given that such trials have become all too common, but rather the price of enrollment: $1 million. Worse, the trial is being conducted in Colombia; the therapy doesn’t have the greatest preclinical justification; and it’s a phase 1 trial, which means it is only trial of safety, not efficacy. How can unethical and scientifically dubious trials like this be stopped?
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Drs. Alberto Siller and Alberto Garcia are at it again at Clínica 0-19, peddling a dubious case series touting their DIPG treatment. Let’s just say that it does not demonstrate that their treatment is better than existing treatments; i.e., not very good.
