I warned you. I’ve been warning you for four years. Now that a federal right-to-try law has passed, the profiteering has begun. Let patients beware!
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On Wednesday, President Trump signed a federal right-to-try bill into law with great fanfare, making extravagant claims for it. It’s time to reiterate one last time that right-to-try will not help terminally ill patients but it will strip important protections from them. It’s pure snake oil.
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“Right-to-try” laws are a cruel sham that purport to allow terminally ill patients access to promising experimental drugs. In reality, they strip away many protections and leave vulnerable patients on their own. After four years and a number of toothless state laws, a federal version of “right-to-try” has passed Congress and is poised to become law. Once President Trump signs the bill this week, this federal version of “right-to-try” will leave terminally ill patients on their own and will likely be the first step in returning the FDA to its pre-thalidomide state, in which it only required evidence of safety, not efficacy, to approve drugs.
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Cancer quacks frequently characterize conventional treatments for cancer as “cutting, poisoning, and burning.” Yet, in Australia a woman with ovarian cancer chose black salve, in essence, “cutting, poisoning, and burning” (but mostly burning and without the cutting) to treat her disease. She died a horrible death. How can black salve still be a thing.
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With the rise of quack stem cell clinics, there has been a rise of crowdfunding campaigns to assist patients in paying for expensive stem cell treatments of unproven efficacy. Unfortunately, as a recent study shows, these crowdfunding campaigns nearly always oversell efficacy and ignore potential risks of the treatments, while making powerful emotional appeals.
